Update: Life and my Journey to Hearing

Well, everyone it has been a while since I have posted. I am sorry I could not get to you sooner. I am so busy lately between Dialysis and keeping up with all the groups I joined to learn more about my CI. Yes, that is right, I am learning, more and more everyday. I have not learned something over and over again, but I am learning something new everyday. I have always been told the "Life will always be full of surprises and those surprises will teach you something new everyday." quote. I am always remembering the days everyone told me that. For those of you who don't believe that this quote is true, just remember the little things are the biggest surprises. So here is what been up with me since the last time I posted.

The biggest change in my life was my Step-Grandma Martha passing on. May she Rest In Peace! She was a big part of me and my family. She made everyone laugh and was a joy to be around. I can honestly say it is something that did change my life. I have always been a believer in GOD, but I never really gave it a thought untill this happened. I would pray on and off, or I would try to ask for his help and it never seemed to work. Boy! Was I wrong in all ways. After the funeral I started praying all the time, asking for strength when I needed it, or just for a good day in the mornings. I always Thank the Man Above everyday for what I have and what I can do. I know he chose these things for me because he knows what is best. And I will never question that again. My Faith is something that will always be there for me when nothing else is or when times get tough. My biggest lesson also was to "let go and let GOD take control." He has made my life so much easier and more pleasant. You all should give it a try!!! Honestly, it will work. GOD answers all my prayers and helps me in the toughest times. I WILL NEVER QUESTION HIM OR MY FAITH AGAIN!!! So.....please have FAITH, HOPE, AND LOVE!!! And LIVE, LAUGH, AND LOVE!!! It will help. I promise you.

My Dialysis time did change back into the afternoons. Wonderful!!! NOT!!! It was hard to adjust to the changes and the times, but I did it. Everything is good, even better than before. LABS, wieght, fluid restrictions, and all side effects are GOOD!!! Which means no problems there. All is good.

As far as the hearing issue goes: I am still deaf for the time being. We are waiting for the manufacture of my CI to call us and say it is a "go". I have been waiting forever it seems like. I can honestly say my patience have been tried to the max with this. It is a very stressful time for me with all this chaos, as I call it. I don't ever remember waiting this long for a surgery, and I have had a lot of surgeries. But here is a shocker: I was told everything was good to go, when it wasn't. My Surgeon had told me all was ready when it wasn't, that means all we were waiting on was a hospital to say okay to do the procedure. WRONG!!! We weren't even close. AB hadn't even gotten my insurance cards yet. I was so shocked and mad. I told mom after this surgery we are finding a new DR. She agreed.

Well, that is all pretty much it for now. Please keep looking for updates. I will try to keep you all updated and informed. It is tough to do when you do Dialysis three days a week though.

LOTS OF LOVE,

Kristin

Life for me recently...

I haven't been on a lot lately to tell you all how I have been. Let me just say this "LIFE SUCKS!" For those of you who haven't heard or been updated recently, a lot has happened. In the last two months life has been hard or just plain stressful.

I lost my Step-Grandma in April. She was not even sick, she just passed on in her sleep one night. It is hard to lose someone no matter how they went or when they go. It was a shock to us all. A shock that will shock us till we pass on also. She will always be in my heart and thoughts and prayers.

I had shattering news when I went to see the DR about my CI surgery. Why does it have to be so difficult for insurance companies and hospitals to deal something. I have never seen someone have such a hard time making deals. I can make them in a split second, they may not be great, but they work.

Next, I found out that some close friends of mine are dealing with their own horrible tragedies. You all know who you are. They are dealt news that no one ever wants to hear. They hear that a family member is sick and they are not doing well or even may not make it. I can relate to them very well. They have been great to me and are supporting me no matter what. And for that I am truly grateful and appreciate them so much more. I will do the same for them no matter what happens, whether they need someone to talk to or just a shoulder to cry on. They live far, but I can manage with "cyber tears." LOL!

Lastly, I have recently posted this: I have been down on life. I am trying to stay positive and keep on going but it is hard, very hard sometimes. I will be darned if I let it get me any farther down than I already am. I can say I am staying busy and keeping up with my life much better than I thought I would. It will just take some time to get used to. I guess I can honestly say, that I am having a hard time because I have been dealing with everything I have for a while now. It just takes a lot out of me. But I will stay up there for my well being and for my family and friends. In the end all is well.

That is my update for my life recently. I am trying to stay so positive for you all. If you think I need some encouragement you can just send it my way. I love all of you so much so please help me through these tough times. I always will return the favor.

Love you all,
Kris

PS: I got a new puppy over the past month. His name is Harley and he is a "Shorkie". He is so precious to me.

CI DR APPOINTMENT

Hey,

I have a appointment with the CI doctor on MAY 7, 2009. I told everyone the wrong date. WHY? IDK! Must be the heat stroke I'm having. LOL! Mother nature always has a way with the weather. I hope you all have lovely weather like I do this weekend. I am probably going to walk SASSY tonight before it gets to dark.

Kris :)

Have you ever played ROOK?

Hey everyone,

I played ROOK last night for the very first. Talk about confusing, it is one of the most confusing games I have ever played. It was a fun to play though. I am actually getting ready to play it again tonight. I am excited, maybe I can remember the rules. LOL! Last night it was like I forgot the rules after my mom told me a gazillion times. I am still learning though, maybe I can get the hang of it tonight. What do you all say?

BTW, for those of you who do not know what ROOK is: it's a card game. A card game that has to be played by everyone at least once (my opinion). Don't try learning from watching others play, because you won't. This is a game that you have to play and learn at the same time. It's not hard once you get the hang of it. It's just a way to pass a night or day even. I hope you get to play it sometime!!

My Weekend at Dad's House!

Everyone, I am just letting you know about my fabulous weekend at dad's. It was so much fun! We didn't do much, but what we did do was plenty. Here is how the weekend went.

Friday: Dad met mom to pick us up. Afterwards we went to the house, then left again for some dinner. My dad and stepmom are Catholic. Great! It is Lent, so we had fish. I am not a big fan of fish. I think it's too greasy, plus it taste funny. I do eat it sometimes. After dinner we watched movies (with subtitles of course.) We watched Surfer Dude and Marley and Me. I recommend them to all who love comedies. Surfer Dude is not for little ones, however. There is a lot of foul language and weed. Marley and Me is a great family movie. All cryers BEWARE! It is a tear jerker a bit. It is so precious though. After the movies it was bedtime. I had a great night sleep.





Saturday: Woke up and the busy day began. We ran errands most of it. I love running errands with them, they make it so fun. We went to Wal-Mart (who doesn't like Wal-Mart?), Farmer's Market, Flower Shop, and Dollar Store. I think they are obsessed with flowers. LOL! Not, just planting them, for Open House. Yep, they are moving! I am so excited. They have waited long enough. We planted flowers most of the day Saturday and cooked out on the grill. Dinner was absolutely divine. We had BBQ Chicken, roasted Zuchinni, Green Beans, and Mac and Cheese. It was heaven! I don't think I have a had such a good dinner in a while. I will say this though, it was better than FISH! YUCKY! Then we watched Twilight. Another great flick. I recommend those who have not seen it, to watch it. It is okay for the little ones, with adult supervision. I also recommend reading the book. Afterwards, it was time for bed. I must admit I was in bed before the movie was over. LOL!




Sunday: We didn't do much, since it is Open House day. They mostly picked up the house and I watched TV. I was contented. No one bothered me. LOL! We did go for a walk with the dogs. I love my babies. They were so happy to be walking. The little one walked for the first time today on a leash. It was hilarious! Poor thing got so tangled up. My lovely visit ended today. I had to come back home. I will be looking forward to the next visit. Hopefully, it's SOON!

Hearing Journey

My hearing journey has been great so far. I have met so many people on HJ. I love each and every one of you all. You all know my story, but how many of you know ALL ABOUT ME? Not many, I know that. Well here goes:

I am 19 years old. I will be 20 on September 2. I can't wait. Plus I will have a new CI to celebrate with. I just graduated from High School last May. I am so glad that I made it. I never expected to make it and graduate with all of my friends, but I did. It was a great time for me. I am going to be attending WKU, once I can hear again and recieve a kidney. It will be another great time for me. I live with my mom and little sister (16 in July). What a lovely age? LOL! We have 3 dogs, one of them is just mine, ALL MINE. She is my baby. Her name is Sassy. She is part chiuhaua and pug. Adorable little thing. She was one of the greatest Christmas presents I ever got. I LOVE HER SO MUCH! Well I guess I better get on to the importants stuff.

I was just qualified for a CI (3/26/09). It was a great day. Plus I am SOOO EXCITED! Like I said, I lost my hearing to a couple of diseases. Only one affects my life still. That is the MYH9 CM. Not for sure what all that entails, but it does take affect of my life. I do dialysis three days a week and currently on the transplant list. All is well with both. I am just waiting on the paperwork to go through for my CI and then I can schedule my surgery. Not too far away right now. Just seems like it. I have made so many friends on HJ, that they have became my second family. I have learned so much about CI since I joined, I just can't learn enough. New ideas, answers, and questions come every day. I am grateful for HJ and my new family.